Our team members come from a variety of health, education and social care professional backgrounds. Between them they have extensive experience of working with people affected by SMA and of other disability information, support and advocacy work. We have two Information and Support Coordinators who provide phone and email support, keep our website and fact sheets up to date and coordinate our shared experiences service.
Our one full-time and two part-time Outreach Workers make home visits all over the country and also keep in touch with people by phone and email.
Fundraising, Management and Administration
We have a Managing Director, a Support Services Manager, a Communications & Administration Coordinator, a Fundraising Campaigns and Supporters Manager and a Fundraising Administrative Assistant. Together, and with your support, we work hard to keep external communications flowing and bring in the charitable income needed to run our services and support research related initiatives.
We are accountable through our Managing Director to the Board of Trustees.