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Our Information Publications

Our factsheets are regularly reviewed and updated in line with our Information Standard accreditation as a provider of safe, reliable, high quality health and social care information.

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What is SMA?

What is SMA?

Our YouTube video and information sheet provides a brief overview of SMA.

The Genetics of SMA

The Genetics of SMA

What causes SMA?

Type 1

Type 1

Our information sheets provide a brief overview of the causes, effects and management of the condition.

Type 2

Type 2

Our information sheets, publications and personal experiences summarise the effects of SMA Type 2.

Type 3

Type 3

Our information sheets, publications and personal experiences summarise the effects of SMA Type 3.

Adult Onset SMA

Adult Onset SMA

Our information sheet and Route Map link give an overview of the different types of Adult Onset SMA.

SMARD

SMARD

Our information sheet gives an overview of the causes, effects and management of Spinal Muscular Atrophy with Respiratory Distress.

Bereavement

Bereavement

Information sheets, reflections and family experiences are shared here for either those who may be facing bereavement or who are already bereaved.

Future Options in Pregnancy

Future Options in Pregnancy

Our information sheet discusses some of the tests you may wish to consider.

Who's Who of Professionals

Who's Who of Professionals

This information sheet lists the job titles of the professionals you are most likely to come across with a brief description of what they do.