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Adult Onset SMA

There are several different types of Adult Onset Spinal Muscular Atrophy (SMA), including SMA Type 4, Kennedy's Disease (also known as Spinal and Bulbar Muscular Atrophy - SBMA), and some types of Distal SMA.

Sources of information and support on the following topics can be found on our Route Mapdiagnosis; genetics; care planning; health; equipment; transport; housing; leisure activities and holidays; financial and legal; education; employment; emotional and social support. 

Our SMA Type 4 information sheet provides an overview of the cause, effects and management of this specific form of Adult Onset SMA. It also includes sources of further information and support.