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Latest News: Information & Support

New Campaign: Tell the PM to Stop Universal Credit Cuts

02 August 2017 / Posted in: Information & Support

Contact a Family are concerned that around 100,000 parents with disabled children are at risk of being worse off on Universal Credit. Sign their petition to the prime minister to reverse cuts to child disability payments under Universal Credit.

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The One Show Making Film about the Issues Disabled People Face when using Public Transport

19 July 2017 / Posted in: Information & Support

They are looking for people to record short videos on their phones/cameras when they genuinely encounter a problem when using public transport.

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Join the Campaign!

19 July 2017 / Posted in: Information & Support

If you want to see a Changing Places toilet near you, setting up a local campaign group to gather support and lobby decision-makers in your area is an effective way of making that change happen.

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Our Survey: So What Did You Tell Us?

19 July 2017 / Posted in: Information & Support

Thank you to those of you who completed our survey and told us what you think of our current services and gave us your ideas about our future direction. Here are the results...

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Rare Disease UK Announces New Project

26 June 2017 / Posted in: Information & Support

Rare Disease UK will be coordinating a new project that aims to find out more about children and young people’s experiences of living with a rare, genetic or undiagnosed condition.

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The 'Secret Life Of Us' Campaign

23 June 2017 / Posted in: Information & Support

The Disabled Children’s Partnership are launching the 'Secret Life of Us' campaign on 28th June, joining forces to fight for better health and social care for disabled children, young people and their families in England.

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Universal Credit

08 June 2017 / Posted in: Information & Support

Contact a Family launched their Universal Credit #KnowYourClaim campaign on 10th May. This was to make sure people know about Universal Credit and how it might affect families.

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Care Quality Commission Seeking Responses To 'Share Your Experience' Initiative

07 June 2017 / Posted in: Information & Support

They want to hear from people living with a disability on their experience of using the services that they regulate; hospitals, GP surgeries, care homes, care at home services, for example.

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SMA Type 3 and Me - New Book Publication

09 May 2017 / Posted in: Information & Support

Explaining SMA and why it happens is quite difficult. This book is aimed at children aged 8 and over but it can also be read to a younger child, be used in schools or when explaining SMA to friends.

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Children's Hospice Week 22nd-28th May 2017

04 May 2017 / Posted in: Information & Support

This year, Together for Short Lives will be turning up the volume on children’s palliative care to raise awareness. Find out how you can get involved.

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