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Latest News: Information & Support

Autumn / Winter Events - Save The Date!

25 July 2018 / Posted in: Information & Support

We are, once again, hosting events around the country so that children, young people, adults and families can meet up. Dates this year are earlier to try to avoid winter illness, bad weather and overstretching family diaries in the run up to Christmas.

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Petition Launched to Fund Lifeline Care for Seriously Ill Children

24 July 2018 / Posted in: Information & Support

Together for Short Lives has launched an online petition calling on the Prime Minister to use some of the recent 3.4% NHS funding boost to fund lifeline care for seriously ill children.

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New Report By Working Families

23 July 2018 / Posted in: Information & Support

Combining work and family life is a complex juggling act for all parents. But for parents of disabled children, the challenges are greater still. This new report highlights how parents of disabled children are struggling to hold down vital jobs.

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The DSA Claim It! Campaign

18 July 2018 / Posted in: Information & Support

This Campaign, from Disability Rights UK, offers advice and information about Disabled Students' Allowances (DSAs) and other university-led adjustments.

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EMPoWER: Early Mobility and Powered Wheelchair Evidence Review

05 July 2018 / Posted in: Information & Support, Research

We are pleased to be involved with a new project to estimate the costs and benefits of providing young disabled children under 5 years with powered mobility aids

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The Disabled Children’s Partnership’s (DCP) Survey of Children’s Services Reveals a Dismal Picture

05 July 2018 / Posted in: Information & Support

Declining quality and more cuts to come. Survey results showed high percentages of families think the quality of health and social care services have got worse over the past few years and many are aware of specific local plans to cut services further. The DCP is calling for ministerial action

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Virtual Reality Game Experience - Research Project

28 June 2018 / Posted in: Information & Support

Are you a deaf or disabled person and want to help create a VR experience? Accentuate is looking for your ideas to help shape a digital experience which will explore choice and value, in relation to genetic screening.

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Speaking Up For Provision Of Cough Assist Machines

26 June 2018 / Posted in: Information & Support

A group of three West Midlands CCGs are reviewing their policy on cough assists, which could result in patients being denied this vital piece of equipment. We have added our voice to protest against this.

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Young People Wanted to get Involved in DR UK Research

25 June 2018 / Posted in: Information & Support

Disability Rights UK is looking for disabled young people aged 12-18 years to become members of the project advisory board for a research project looking at attitudes towards disability and disabled people amongst their peers.

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Carers: Your Right To Request Flexible Working Hours

14 June 2018 / Posted in: Information & Support

Carers UK have information on their website and a free, downloadable guide on your right to request flexible working.

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