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Latest News: Information & Support

Contestants Wanted For A Brand New BBC Show

08 March 2017 / Posted in: Information & Support

Hindsight Productions is looking for a diverse range of contributors from around the UK to take part in a brand new BBC show called 'Letterbox'. Closing date for applications is 31st March.

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Nuffield Council on Bioethics: NIPT Report

01 March 2017 / Posted in: Information & Support

The Nuffield Council on Bioethics today has launched its new report 'Non-invasive prenatal testing: ethical issues' which explores the ethical issues raised by non-invasive prenatal testing (NIPT).

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Maximising Your Income

13 February 2017 / Posted in: Information & Support

Having SMA, or having a child with SMA, can have financial implications so it is important to ensure you are receiving all the benefits and services you are entitled to. There are several organisations that may be able to help with this.

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Campaign To Improve School Transport

10 February 2017 / Posted in: Information & Support

Contact a Family have launched their biggest inquiry into school transport for disabled children, and they want to hear from you. Take part in their survey to share your experiences, both positive and negative.

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The National Key Scheme - Opening Doors to Independent Living

09 February 2017 / Posted in: Information & Support

Be in control and buy a Radar Key from Disability Rights UK for priority access to over 9000 accessible toilets in the UK.

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Disability Rights UK Short Seminars

07 February 2017 / Posted in: Information & Support

Do you employ a personal care assistant, or know someone who does? These short seminars will explain the law surrounding employing a personal care assistant.

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BBC Two's 'Big Life Fix'

12 January 2017 / Posted in: Information & Support

The producers of this show (which sees a skilled team of scientists, engineers and designers create bespoke technology for individuals and groups) are looking for people, for their second series, who feel they could benefit from a tailor-made invention.

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Neuromuscular Centre (NMC) Midlands

12 January 2017 / Posted in: Information & Support

NMC is holding an open day. The afternoon will enable people to learn about the facilities and support offered by the NMC and the chance to meet others and take part in taster sessions.

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Turn2us Launches 'No Cold Homes' Campaign

14 December 2016 / Posted in: Information & Support

Turn2us' poverty campaign, No Cold Homes, is running throughout the Winter and they are promoting the support available for people who can’t afford to heat their homes this Winter.

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New SMA Voices: Georgia

05 December 2016 / Posted in: Information & Support

In this new SMA Voices, Georgia shares her story of becoming a mum to Lio.

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