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Latest News: Information & Support

New SMA Voices: Mia

26 July 2016 / Posted in: Information & Support

Mia watched a video talk by Stella Young. It got her thinking and prompted the 14 year old to share her own thoughts and reflections with us.

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New SMA Voices: Luke

22 July 2016 / Posted in: Information & Support

Luke is 15 years old and in year 10 at school. He recently did a week’s work experience at a police station in Gloucester and spoke to SMA Support UK about how it went.

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PIP: Second Independent Review Call For Evidence

21 July 2016 / Posted in: Information & Support

The Department for Work and Pensions has appointed Paul Gray to undertake the second independent review of the Personal Independence Payment (PIP) assessment. This consultation closes 6 September 2016 5:00pm.

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MDUK Launches Report - Physiotherapy Provision Is Overstretched

19 July 2016 / Posted in: Information & Support

MDUK reveals that 60% of individuals with a muscle-wasting condition are unable to access appropriate physiotherapy for their condition.

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Notice For Members

19 July 2016 / Posted in: Information & Support

A reminder that the deadline for new Trustee nominations is the 31st July 2016 at 5pm. Please contact us should you require any additional forms by emailing office@smasupportuk.org.uk

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Sharing Experiences

07 July 2016 / Posted in: Information & Support

In reviewing the value and importance of our Peer Support Service in its widest sense, we’re introducing a new (and hopefully clearer) umbrella term of ‘Sharing Experiences’. This will bring together our Peer Support Service and additional opportunities for being in touch with others.

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Updated Information Sheet

06 July 2016 / Posted in: Information & Support

We have updated our information sheet: 'Leisure Activities for Children and Young People with Spinal Muscular Atrophy'. This lists some of the many organisations that enable people with disabilities, including SMA, to participate in leisure activities.

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SMA Medical Guidance For DWP Staff

05 July 2016 / Posted in: Information & Support

We have been in contact with the DWP to ask what information they use to make decisions for Disability Living Allowance (DLA) and for Attendance Allowance (AA).

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Kidz to Adultz Wales

20 June 2016 / Posted in: Information & Support

One of the largest, free UK exhibitions dedicated to children & young adults with disabilities and additional needs, their families and the professionals who support them. Taking place Thursday 7th July.

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Campaign To Increase Carer’s Allowance Earnings Threshold

09 June 2016 / Posted in: Information & Support

Contact a Family is asking people to sign an open letter calling on the government to make this increase to stop carers losing out on support.

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