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Latest News: Information & Support

Call For Evidence

07 September 2016 / Posted in: Information & Support

This is your opportunity to have a say on disabled people's rights under the United Nations Convention on the Rights of Persons with Disabilities.

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Disabled Facilities Grants Petition Launched

25 August 2016 / Posted in: Information & Support

Following discoveries made by Disability United's Editor, Fleur Perry, a petition has been launched to make sure that all disabled people can have the adaptations they need.

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Adult Onset SMA Route Map

19 August 2016 / Posted in: Information & Support

The Adult Onset SMA Route Map has been published! It has been written for individuals, families and professionals and it contains information on health, sources of support, and daily living topics.

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New Information Leaflet: 'Family Experiences of Bereavement'

16 August 2016 / Posted in: Information & Support

This leaflet shares the experiences of families whose child with Spinal Muscular Atrophy has died. They talk about their personal experience of grief and how they cope with bereavement.

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New SMA Voices: Mia

26 July 2016 / Posted in: Information & Support

Mia watched a video talk by Stella Young. It got her thinking and prompted the 14 year old to share her own thoughts and reflections with us.

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New SMA Voices: Luke

22 July 2016 / Posted in: Information & Support

Luke is 15 years old and in year 10 at school. He recently did a week’s work experience at a police station in Gloucester and spoke to SMA Support UK about how it went.

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PIP: Second Independent Review Call For Evidence

21 July 2016 / Posted in: Information & Support

The Department for Work and Pensions has appointed Paul Gray to undertake the second independent review of the Personal Independence Payment (PIP) assessment. This consultation closes 6 September 2016 5:00pm.

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MDUK Launches Report - Physiotherapy Provision Is Overstretched

19 July 2016 / Posted in: Information & Support

MDUK reveals that 60% of individuals with a muscle-wasting condition are unable to access appropriate physiotherapy for their condition.

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Notice For Members

19 July 2016 / Posted in: Information & Support

A reminder that the deadline for new Trustee nominations is the 31st July 2016 at 5pm. Please contact us should you require any additional forms by emailing office@smasupportuk.org.uk

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Sharing Experiences

07 July 2016 / Posted in: Information & Support

In reviewing the value and importance of our Peer Support Service in its widest sense, we’re introducing a new (and hopefully clearer) umbrella term of ‘Sharing Experiences’. This will bring together our Peer Support Service and additional opportunities for being in touch with others.

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