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Latest News: Information & Support

BBC Two's 'Big Life Fix'

12 January 2017 / Posted in: Information & Support

The producers of this show (which sees a skilled team of scientists, engineers and designers create bespoke technology for individuals and groups) are looking for people, for their second series, who feel they could benefit from a tailor-made invention.

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Neuromuscular Centre (NMC) Midlands

12 January 2017 / Posted in: Information & Support

NMC is holding an open day. The afternoon will enable people to learn about the facilities and support offered by the NMC and the chance to meet others and take part in taster sessions.

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Turn2us Launches 'No Cold Homes' Campaign

14 December 2016 / Posted in: Information & Support

Turn2us' poverty campaign, No Cold Homes, is running throughout the Winter and they are promoting the support available for people who can’t afford to heat their homes this Winter.

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New SMA Voices: Georgia

05 December 2016 / Posted in: Information & Support

In this new SMA Voices, Georgia shares her story of becoming a mum to Lio.

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Information, Support and Social Events for 2016/17

23 November 2016 / Posted in: Information & Support

We have posted a list of some information, support and social events happening towards the end of 2016 and throughout next year that may be of interest to you.

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Research About Experiences of Accessibility in Public Space and Transport

22 November 2016 / Posted in: Information & Support

Sunil Rodger, a postgraduate at Newcastle University, is seeking power wheelchair users to take part in research about their experiences of accessibility in public space and transport.

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New SMA Voices: Martyn

04 November 2016 / Posted in: Information & Support

Martyn and his fiancé, Kasia, recently travelled to Devon to try an accessible horse and carriage ride at the Calvert Trust, Exmoor. Find out how they got on.

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Disability North’s International Day of Disabled People 2016

26 October 2016 / Posted in: Information & Support

Each year, Disability North holds an event to celebrate the United Nation’s International Day of Disabled People. The event is a celebration of the services, facilities and projects in the region that promote inclusion and access for disabled people.

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EURORDIS Awards 2017

21 October 2016 / Posted in: Information & Support

EURORDIS – who represent rare disease patient organisations – have opened the nominations for the EURORDIS Awards 2017.

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Petition To Change Law

28 September 2016 / Posted in: Information & Support

Steven, who has SMA Type 2 and is currently abroad as part of an Erasmus programme, has set up a petition as the DWP has told him that after 13 weeks abroad he will no longer be entitled to his motability vehicle.

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