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Latest News: Information & Support

A Family Guide to the SEND System in England

04 May 2016 / Posted in: Information & Support

Together for Short Lives has published their new family guide to the special educational needs and disability (SEND) system in England, which you can download and use free of charge.

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Report out on the Accessibility of Public Transport

27 April 2016 / Posted in: Information & Support

MDUK's Trailblazers are a group of disabled campaigners from across the UK who tackle the social issues affecting young disabled people. This report evaluates the accessibility of public transport in the UK.

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Genetic Alliance UK ‘Hidden Costs of Rare Diseases’ Study

22 April 2016 / Posted in: Information & Support

The study urgently needs individuals or family members to test a ‘patient diary’ capturing the time spent coordinating care, money spent on travelling to appointments etc.

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Parliament Petition

22 April 2016 / Posted in: Information & Support

This petition is calling for airlines to allow designated wheelchair accessible spaces on commercial flights.

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Contact a Family: Campaign Against Cuts To Short Breaks

18 April 2016 / Posted in: Information & Support

​Contact a Family have found worrying evidence of cuts to crucial short breaks (respite) services in many local areas. They're calling on supporters to send their template email to their local council to help protect the future of short breaks for families.

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Trailblazers Media Representation Campaign

18 April 2016 / Posted in: Information & Support

Trailblazers want to find out what you think about the way in which disabled people are portrayed in the media and what you think needs to be done to improve these representations. The survey is open to young disabled people up to the age of 35 years and closes on Monday 25th April 2016.

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NAIDEX: Tuesday 26th - Thursday 28th April

12 April 2016 / Posted in: Information & Support

Naidex is the UK’s largest disability, rehabilitation and homecare event with over 200 exhibitors showcasing their products to more than 9,000 visitors. Admission is free.

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New SMA Voices: Jasmine

11 April 2016 / Posted in: Information & Support

Jasmine shares some of her experiences and discusses how she went about raising the funds for a new wheelchair. You can read her story by clicking here.

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SMA Type 2 and Me - New Book Publication

07 April 2016 / Posted in: Information & Support

This book is written for children who want to learn more about SMA. It is aimed at children aged 8 to 12 years old but it can also be read to a younger child. It can also be used in schools and when explaining SMA to friends.

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Queen Elizabeth’s Foundation for Disabled People (QEF) is holding its first public exhibition

04 April 2016 / Posted in: Information & Support

The exhibition is entitled ‘Crippled, Handicapped, Disabled: Living Beyond Labels'. It explores changing attitudes towards disability over the last 80 years and looks at the evolution of the charity. It runs between 20th – 24th April.

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