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Latest News: Information & Support

Information & Support Day and Sunday Fun Day April 2nd & 3rd 2016

16 March 2016 / Posted in: Information & Support

Thank you to everyone who has booked to attend one or both of these events. We regret that unless you have contacted us already (March 17th) we are unable to take any more bookings as these events have proved to be so popular.

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Kidz to Adultz in the Middle

25 February 2016 / Posted in: Information & Support

One of the largest, FREE UK exhibitions dedicated to children and young adults with disabilities and special needs, their families and the professionals who work with them. It's taking place on Thursday 10th March 2016.

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New SMA Voices: Máté

25 February 2016 / Posted in: Information & Support

Máté Szabo’s family share their experiences, thoughts and memories of their son who was diagnosed with SMA Type 1 (29/01/2015 – 11/08/2015). You can read their story here.

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QEF Kids Day on Friday 4th March

23 February 2016 / Posted in: Information & Support

Queen Elizabeth's Foundation for Disabled People are inviting you to their Kids Day which will involve an exhibition of children's equipment, QEF staff providing a range of assessments and a range of bite-size training sessions.

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Free Graphic Design Courses

18 February 2016 / Posted in: Information & Support

NMC (The NeuroMuscular Centre) currently have a number of student vacancies and are looking for people who would be interested in doing a course in graphic design.

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Junior and Primary Sports Camps for disabled young people

16 February 2016 / Posted in: Information & Support

These are now taking registrations and are taking place at Stoke Mandeville Stadium. They offer disabled young people coaching in a wide variety of sports in a safe, friendly and complete inclusive environment.

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Wheelpower – British Wheelchair Sport Survey

16 February 2016 / Posted in: Information & Support

Wheelpower want to find out what can be done to help more people who use wheelchairs in everyday life, or would use one for sport, to lead healthy active lives and take part in sport. Closing date is 6th May 2016.

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Screening Consultation Results

12 February 2016 / Posted in: Information & Support

Dr. Felicity Boardman has published a report of her key findings about attitudes towards genetic screening for SMA and how these findings could be used in policy consultations.

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Disabled Access Day - Waterworks Museum, Hereford

04 February 2016 / Posted in: Information & Support

Disabled Access Day 2016 will be taking place on Saturday 12th of March. The Waterworks Museum in Hereford is taking part, offering free entry for people involved in the day.

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Supporting The Transitions Of Disabled People Through Education And Employment

31 January 2016 / Posted in: Information & Support

STEMM DAC are holding an event to share and develop best practice on Thursday 17th March 2016 at the Royal Society in London. Only a few places left!

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