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Latest News: Information & Support

Contact a Family: Campaign Against Cuts To Short Breaks

18 April 2016 / Posted in: Information & Support

​Contact a Family have found worrying evidence of cuts to crucial short breaks (respite) services in many local areas. They're calling on supporters to send their template email to their local council to help protect the future of short breaks for families.

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Trailblazers Media Representation Campaign

18 April 2016 / Posted in: Information & Support

Trailblazers want to find out what you think about the way in which disabled people are portrayed in the media and what you think needs to be done to improve these representations. The survey is open to young disabled people up to the age of 35 years and closes on Monday 25th April 2016.

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NAIDEX: Tuesday 26th - Thursday 28th April

12 April 2016 / Posted in: Information & Support

Naidex is the UK’s largest disability, rehabilitation and homecare event with over 200 exhibitors showcasing their products to more than 9,000 visitors. Admission is free.

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New SMA Voices: Jasmine

11 April 2016 / Posted in: Information & Support

Jasmine shares some of her experiences and discusses how she went about raising the funds for a new wheelchair. You can read her story by clicking here.

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SMA Type 2 and Me - New Book Publication

07 April 2016 / Posted in: Information & Support

This book is written for children who want to learn more about SMA. It is aimed at children aged 8 to 12 years old but it can also be read to a younger child. It can also be used in schools and when explaining SMA to friends.

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Queen Elizabeth’s Foundation for Disabled People (QEF) is holding its first public exhibition

04 April 2016 / Posted in: Information & Support

The exhibition is entitled ‘Crippled, Handicapped, Disabled: Living Beyond Labels'. It explores changing attitudes towards disability over the last 80 years and looks at the evolution of the charity. It runs between 20th – 24th April.

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Information & Support Day and Sunday Fun Day April 2nd & 3rd 2016

16 March 2016 / Posted in: Information & Support

Thank you to everyone who has booked to attend one or both of these events. We regret that unless you have contacted us already (March 17th) we are unable to take any more bookings as these events have proved to be so popular.

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Kidz to Adultz in the Middle

25 February 2016 / Posted in: Information & Support

One of the largest, FREE UK exhibitions dedicated to children and young adults with disabilities and special needs, their families and the professionals who work with them. It's taking place on Thursday 10th March 2016.

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New SMA Voices: Máté

25 February 2016 / Posted in: Information & Support

Máté Szabo’s family share their experiences, thoughts and memories of their son who was diagnosed with SMA Type 1 (29/01/2015 – 11/08/2015). You can read their story here.

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QEF Kids Day on Friday 4th March

23 February 2016 / Posted in: Information & Support

Queen Elizabeth's Foundation for Disabled People are inviting you to their Kids Day which will involve an exhibition of children's equipment, QEF staff providing a range of assessments and a range of bite-size training sessions.

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