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Latest News: Information & Support

SMA Type 2 and Me - New Book Publication

07 April 2016 / Posted in: Information & Support

This book is written for children who want to learn more about SMA. It is aimed at children aged 8 to 12 years old but it can also be read to a younger child. It can also be used in schools and when explaining SMA to friends.

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Queen Elizabeth’s Foundation for Disabled People (QEF) is holding its first public exhibition

04 April 2016 / Posted in: Information & Support

The exhibition is entitled ‘Crippled, Handicapped, Disabled: Living Beyond Labels'. It explores changing attitudes towards disability over the last 80 years and looks at the evolution of the charity. It runs between 20th – 24th April.

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Information & Support Day and Sunday Fun Day April 2nd & 3rd 2016

16 March 2016 / Posted in: Information & Support

Thank you to everyone who has booked to attend one or both of these events. We regret that unless you have contacted us already (March 17th) we are unable to take any more bookings as these events have proved to be so popular.

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Kidz to Adultz in the Middle

25 February 2016 / Posted in: Information & Support

One of the largest, FREE UK exhibitions dedicated to children and young adults with disabilities and special needs, their families and the professionals who work with them. It's taking place on Thursday 10th March 2016.

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New SMA Voices: Máté

25 February 2016 / Posted in: Information & Support

Máté Szabo’s family share their experiences, thoughts and memories of their son who was diagnosed with SMA Type 1 (29/01/2015 – 11/08/2015). You can read their story here.

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QEF Kids Day on Friday 4th March

23 February 2016 / Posted in: Information & Support

Queen Elizabeth's Foundation for Disabled People are inviting you to their Kids Day which will involve an exhibition of children's equipment, QEF staff providing a range of assessments and a range of bite-size training sessions.

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Free Graphic Design Courses

18 February 2016 / Posted in: Information & Support

NMC (The NeuroMuscular Centre) currently have a number of student vacancies and are looking for people who would be interested in doing a course in graphic design.

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Junior and Primary Sports Camps for disabled young people

16 February 2016 / Posted in: Information & Support

These are now taking registrations and are taking place at Stoke Mandeville Stadium. They offer disabled young people coaching in a wide variety of sports in a safe, friendly and complete inclusive environment.

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Wheelpower – British Wheelchair Sport Survey

16 February 2016 / Posted in: Information & Support

Wheelpower want to find out what can be done to help more people who use wheelchairs in everyday life, or would use one for sport, to lead healthy active lives and take part in sport. Closing date is 6th May 2016.

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Screening Consultation Results

12 February 2016 / Posted in: Information & Support

Dr. Felicity Boardman has published a report of her key findings about attitudes towards genetic screening for SMA and how these findings could be used in policy consultations.

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