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Latest News: Information & Support

Ben, who is 15 and has SMA Type 2, gives interview to local paper

31 January 2016 / Posted in: Information & Support

He talks to Marion Sauvebois about his experiences of living with spinal muscular atrophy and discusses his ambitions for a future where there is a better understanding of disabled people.

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Young Person’s Guide to Personal Budgets in England

31 January 2016 / Posted in: Information & Support

This new e-resource by Together for Short Lives aims to help young people decide if a personal budget is right for them. It is free to download.

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Enhance the UK: Undressing Disability Campaign

12 January 2016 / Posted in: Information & Support

Enhance the UK are currently running a campaign on sex and disability called 'Undressing Disability'.

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Into Higher Education 2016 Guide Now Available

12 January 2016 / Posted in: Information & Support

Disability Rights UK have published 'Into Higher Education' - a guide for anyone with a health condition, learning difficulty or disability who is thinking about studying in higher education starting September 2016.

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The Route Map for SMA Type 1 has been fully updated

11 January 2016 / Posted in: Information & Support

The route map has been written for families and professionals and it contains information on health, sources of support, and daily living topics including toys and play, leisure time, transport, equipment and financial information.

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Leonard Cheshire Change100 Programme

16 December 2015 / Posted in: Information & Support

This programme offers paid summer work placements and mentoring for talented university students and recent graduates with any disability or long-term health condition.

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New SMA Voices

16 December 2015 / Posted in: Information & Support

Lorraine, who has SMA Type 2, has written about her experience of being pregnant and becoming a Mum in 1996.

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Consultation With Families Affected By SMA Type 1 - Thank You To Those Who Took Part

15 December 2015 / Posted in: Information & Support

Thank you to the families who replied to our survey - we will get back to you with the results early in 2016.

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Whizz-Kidz Launches ‘Get on Board’ Accessible Public Transport Campaign

30 November 2015 / Posted in: Information & Support

Find out about the new 'Get on Board' Campaign from Whizz-Kidz and how you can get involved and pledge your support.

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International Day of Persons with Disabilities: 3 December 2015

26 November 2015 / Posted in: Information & Support

The International Day of Persons with Disabilities (IDPD) has been commemorated since 1992 and this year the theme is: "Inclusion matters - access and empowerment for people of all abilities."

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