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Latest News: Information & Support

Serious Case Review Report Family A

23 November 2015 / Posted in: Information & Support

We remain saddened that these three children could not go on to live the long, productive and fulfilling lives experienced by the majority of those who have SMA Type 2, and by the distress this has caused to all those who knew them.

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Accomable

19 November 2015 / Posted in: Information & Support

We have provided seed funding for this innovative online service to help people with a disability or mobility problems find accessible holiday properties.

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Turn2us: No Cold Homes Campaign

18 November 2015 / Posted in: Information & Support

New research by the national charity Turn2us has found that one in two low income households are struggling to afford their energy costs, despite being in work. Find out about their new campaign.

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BBC Digital Recruitment Event

16 November 2015 / Posted in: Information & Support

BBC Digital and Engineering is running another People with Disabilities in Tech event at MediaCityUK in Salford on Thursday 17 December with the aim of attracting more top disabled tech talent to the BBC.

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Bad Info = Bad Health?

12 November 2015 / Posted in: Information & Support

Can you help a PhD researcher who is trying to find out what happens to bad information that is posted on online discussion forums?

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A New Information Leaflet

09 November 2015 / Posted in: Information & Support

The information production team at SMA Support UK, which is accredited by the Information Standard, has just published a new information leaflet.

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Contact A Family's Petition To Oppose Cuts

22 October 2015 / Posted in: Information & Support

Contact a Family are currently running a campaign on tax credits and a petition against the cuts which will come into force next year.

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What Is Your View Of Genetic Editing Technologies?

15 October 2015 / Posted in: Information & Support

Genetic Alliance UK want to know how those affected by genetic conditions feel about the use of gene editing technologies in different circumstances. Deadline: 13th November 2015.

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NIRDP Family Fun Day and AGM: 24 October 2015

06 October 2015 / Posted in: Information & Support

The Northern Ireland Rare Disease Partnership are holding their Family Fun Day and AGM on 24 October (from 2pm till 4pm) in the Maldron Hotel, Airport Road, Aldergrove.

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Kidz to Adultz up North, Manchester: Thursday 19th November 2015

06 October 2015 / Posted in: Information & Support

Free event dedicated to children and young adults with disabilities and special needs, their families and the professionals who work with them.

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