Latest News: Information
23 November 2016 / Posted in: Information
We have posted a list of some information, support and social events happening towards the end of 2016 and throughout next year that may be of interest to you.
22 November 2016 / Posted in: Information
Sunil Rodger, a postgraduate at Newcastle University, is seeking power wheelchair users to take part in research about their experiences of accessibility in public space and transport.
04 November 2016 / Posted in: Information
Martyn and his fiancé, Kasia, recently travelled to Devon to try an accessible horse and carriage ride at the Calvert Trust, Exmoor. Find out how they got on.
26 October 2016 / Posted in: Information
Each year, Disability North holds an event to celebrate the United Nation’s International Day of Disabled People. The event is a celebration of the services, facilities and projects in the region that promote inclusion and access for disabled people.
21 October 2016 / Posted in: Information
EURORDIS – who represent rare disease patient organisations – have opened the nominations for the EURORDIS Awards 2017.
28 September 2016 / Posted in: Information
Steven, who has SMA Type 2 and is currently abroad as part of an Erasmus programme, has set up a petition as the DWP has told him that after 13 weeks abroad he will no longer be entitled to his motability vehicle.
27 September 2016 / Posted in: Information
Genetic Alliance UK’s ‘Hidden Costs’ report reveals that individuals and families affected by rare diseases face substantial financial and psychosocial costs as a result of poorly coordinated care in the UK.
23 September 2016 / Posted in: Information
SMA Support UK has received a commended certificate in the 2016 British Medical Association (BMA) Patient Information Awards for our leaflet Future Options in Pregnancy.
21 September 2016 / Posted in: Information
In this SMA Voices, Finlay's parents share their thoughts, feelings and experiences about their son who had SMA Type 1 and sadly died last year.
20 September 2016 / Posted in: Information
In our latest SMA Voices story, Esther Fox, artist, and Felicity Boardman, researcher, ask all of us to consider the wide ranging implications that pre-natal genetic screening would have if it were more widely available.