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Latest News: Our Community

Join EHRC's Disability Advisory Committee Join EHRC's Disability Advisory Committee

09 November 2017 / Posted in: Our Community

They are looking for high-performing individuals with disability expertise to join their new Disability Advisory Committee. Applications close 24th November.

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Inspirations Autumn 2017 Inspirations Autumn 2017

09 November 2017 / Posted in: Our Community

Follow the link to download the Autumn 2017 edition of our 'Inspirations' newsletter, and the Christmas insert.

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UK SMA Awareness Day 2017 - The Results! UK SMA Awareness Day 2017 - The Results!

02 October 2017 / Posted in: Our Community

Thank you to everyone who helped to make this Awareness Day campaign our biggest yet! Read the facts and figures here.

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Our Survey: So What Did You Tell Us? Our Survey: So What Did You Tell Us?

29 June 2017 / Posted in: Our Community

Thank you to those of you who completed our survey and told us what you think of our current services and gave us your ideas about our future direction. Here are the results...

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Summer Social Events 2017 Summer Social Events 2017

28 June 2017 / Posted in: Our Community

You're warmly invited to attend one of our summer social events. Please book early to secure your place and we look forward to seeing you there.

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Inspirations Spring 2017 Inspirations Spring 2017

26 June 2017 / Posted in: Our Community

Follow the link to download the latest copy of our Inspirations newsletter for Spring 2017.

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SMA Voices: Maddison SMA Voices: Maddison

03 May 2017 / Posted in: Our Community

Lidia, Maddison's mum, shares their family's thoughts and experiences in this SMA Voices piece about Maddison who was diagnosed with SMARD at 9 months and is now 8 years old.

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SMA Voices: Ross SMA Voices: Ross

12 April 2017 / Posted in: Our Community

Ross Lannon is 23 years old and has Spinal Muscular Atrophy Type 2. He has written an SMA Voices for our website that describes his recent trip to the Calvert Trust in Exmoor with a group of friends.

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WellChild Awards 2017 WellChild Awards 2017

09 March 2017 / Posted in: Our Community

Do you know a seriously ill child, young person or caring professional that inspires those around them? Why not nominate them for a 2017 WellChild Award. Closing date for nominations is the 1st May 2017.

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SMA Voices: Hello From Charlie SMA Voices: Hello From Charlie

10 February 2017 / Posted in: Our Community

Charlie contacted us wanting to become more involved with SMA Support UK and offering to volunteer his services. We suggested he might like to start by sharing some of his many and varied experiences.

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