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Latest News: Our Community

Peer Support Volunteers Help with SMA Type 2 Route Map Peer Support Volunteers Help with SMA Type 2 Route Map

26 March 2015 / Posted in: Our Community

Our thanks to the volunteers who joined us for a workshop to review all the information we hope to publish soon.

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February's Supporter of the Month February's Supporter of the Month

10 March 2015 / Posted in: Our Community

We are delighted to announce the staff and customers of Parfetts Cash and Carry, Liverpool as February's Supporters of the Month!

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January's Supporter of the Month January's Supporter of the Month

10 February 2015 / Posted in: Our Community

After seeing people so frequently shave their hair for charity, Carl decided to stop close shaving his head and grow his hair for one whole year!

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Expedition to climb 17 Welsh 3000ft Peaks Expedition to climb 17 Welsh 3000ft Peaks

05 September 2014 / Posted in: Help Us, Our Community

Keen fundraiser Julian Williams takes on this feat inspired by his daughter Molly.

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SMA Awareness Month

01 August 2014 / Posted in: Our Community

Spinal Muscular Atrophy International Awareness Month was launched 18 years ago in 1996. Raising awareness of SMA in the general public can help lead to increased resources for SMA research and better care for families and individuals affected by SMA. While this is a rare condition, 1 in 40-60 of us carry the gene that causes SMA which is why we need to raise awareness. This is where you can help.

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Martyn Sibley Martyn Sibley

25 July 2014 / Posted in: Our Community

Read about Martyn, his inspirational experiences that show nothing will get in his way.

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Tori Elliott - SMAll Adventure Tori Elliott - SMAll Adventure

24 April 2014 / Posted in: Our Community

My name is Tori, I’m fiercely independent and I was diagnosed with Spinal Muscular Atrophy type 2 at 18 months old. I’m now living my life, exactly as I choose to.

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