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Latest News: Our Community

SMA Awareness Month

01 August 2014 / Posted in: Our Community

Spinal Muscular Atrophy International Awareness Month was launched 18 years ago in 1996. Raising awareness of SMA in the general public can help lead to increased resources for SMA research and better care for families and individuals affected by SMA. While this is a rare condition, 1 in 40-60 of us carry the gene that causes SMA which is why we need to raise awareness. This is where you can help.

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Martyn Sibley Martyn Sibley

25 July 2014 / Posted in: Our Community

Read about Martyn, his inspirational experiences that show nothing will get in his way.

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Tori Elliott - SMAll Adventure Tori Elliott - SMAll Adventure

24 April 2014 / Posted in: Our Community

My name is Tori, I’m fiercely independent and I was diagnosed with Spinal Muscular Atrophy type 2 at 18 months old. I’m now living my life, exactly as I choose to.

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