Tel: 01789 267520

New SMA Voices: Georgia

05 December 2016 / Posted in: Information & Support

In this new SMA Voices, Georgia shares her story of becoming a mum to Lio.

Read full story

PhD Studentships at Royal Holloway, University of London

05 December 2016 / Posted in: Research

Applications are open for PhD Studentships and one of the available projects is 'Psychosocial and ethical issues in perinatal gene and cell therapies for Spinal Muscular Atrophy'. Deadline for applications if Friday 9th December.

Read full story

Supporters of the Month: November 2016 Supporters of the Month: November 2016

29 November 2016 / Posted in: Our Community

We’re delighted to announce Kim Darby, Ellie Darby-Prangnell, Margaret & David Mateer, Jo McNicol and José Rogers as our joint Supporters of the Month for November 2016!

Read full story

Get Out There For SMA - Running Events 2016/17 Get Out There For SMA - Running Events 2016/17

24 November 2016 / Posted in: Help Us

We’ve got three exciting running events with guaranteed places for you to 'Get Out There For SMA'. Now's your chance to sign up to run off some of those mince pies!

Read full story

Information, Support and Social Events for 2016/17

23 November 2016 / Posted in: Information & Support

We have posted a list of some information, support and social events happening towards the end of 2016 and throughout next year that may be of interest to you.

Read full story

Research About Experiences of Accessibility in Public Space and Transport

22 November 2016 / Posted in: Information & Support

Sunil Rodger, a postgraduate at Newcastle University, is seeking power wheelchair users to take part in research about their experiences of accessibility in public space and transport.

Read full story

Biogen and Ionis Provide Community Update on CHERISH Nusinersen Trial

08 November 2016 / Posted in: Research

Biogen and Ionis Pharmaceuticals have provided the following community statement regarding the interim analysis of the CHERISH trial.

Read full story

New Pivotal Study Announced by AveXis

07 November 2016 / Posted in: Research

AveXis has announced details about a future pivotal trial of their gene therapy drug for SMA Type 1, AVXS-101.

Read full story

New SMA Voices: Martyn

04 November 2016 / Posted in: Information & Support

Martyn and his fiancé, Kasia, recently travelled to Devon to try an accessible horse and carriage ride at the Calvert Trust, Exmoor. Find out how they got on.

Read full story

Christmas Jumper Day for SMA 2016! Christmas Jumper Day for SMA 2016!

02 November 2016 / Posted in: Help Us

We can’t wait for this year’s Christmas Jumper Day for SMA on Friday 9th December and we hope you can join us to make this one the biggest yet!

Read full story