05 December 2016 / Posted in: Information & Support
In this new SMA Voices, Georgia shares her story of becoming a mum to Lio.
05 December 2016 / Posted in: Research
Applications are open for PhD Studentships and one of the available projects is 'Psychosocial and ethical issues in perinatal gene and cell therapies for Spinal Muscular Atrophy'. Deadline for applications if Friday 9th December.
29 November 2016 / Posted in: Our Community
We’re delighted to announce Kim Darby, Ellie Darby-Prangnell, Margaret & David Mateer, Jo McNicol and José Rogers as our joint Supporters of the Month for November 2016!
24 November 2016 / Posted in: Help Us
We’ve got three exciting running events with guaranteed places for you to 'Get Out There For SMA'. Now's your chance to sign up to run off some of those mince pies!
23 November 2016 / Posted in: Information & Support
We have posted a list of some information, support and social events happening towards the end of 2016 and throughout next year that may be of interest to you.
22 November 2016 / Posted in: Information & Support
Sunil Rodger, a postgraduate at Newcastle University, is seeking power wheelchair users to take part in research about their experiences of accessibility in public space and transport.
08 November 2016 / Posted in: Research
Biogen and Ionis Pharmaceuticals have provided the following community statement regarding the interim analysis of the CHERISH trial.
07 November 2016 / Posted in: Research
AveXis has announced details about a future pivotal trial of their gene therapy drug for SMA Type 1, AVXS-101.
04 November 2016 / Posted in: Information & Support
Martyn and his fiancé, Kasia, recently travelled to Devon to try an accessible horse and carriage ride at the Calvert Trust, Exmoor. Find out how they got on.
02 November 2016 / Posted in: Help Us
We can’t wait for this year’s Christmas Jumper Day for SMA on Friday 9th December and we hope you can join us to make this one the biggest yet!