Are you Willing to Talk to the Media About your Experience of SMA and Access to Nusinersen?
16 February 2018
We are working with Muscular Dystrophy UK (MDUK), the SMA Trust and TreatSMA to publicise the start of the National Institute for Health and Care Excellence’s (NICE) appraisal for the SMA treatment, Spinraza.
Having families who are willing to talk to the media about what it is like to live with the impact of SMA is so important. Without your help, we wouldn’t be able raise awareness of SMA, or put pressure on bodies such as NICE, NHS England and the pharmaceutical sector, to bring treatments to individuals and families as quickly as possible.
If you would like to find out how you can support our media work, please contact:
Muscular Dystrophy UK
T: 020 7803 2887