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Clinicians and Charities Make Further Appeal to NHS England to Widen Scope of SMA Type 1 Nusinersen EAP

30 October 2017

Our thanks to Professor Francesco Muntoni for taking the lead on this.

A letter signed by North Star clinicians and the patient advocacy charities has been submitted urging NHS England to widen the scope of the SMA Type 1 nusinersen EAP so that it is not limited to only those with two SMN2 copies. Professor Muntoni presents clear evidence that he has also submitted as a Preliminary Policy Proposition to NHS England asking them to change their interim clinical commissioning policy to this effect.

Read the letter here