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Eurordis (European Organisation for Rare Diseases) Needs Your Expertise

16 February 2016

Major changes have occurred in the recent years regarding the information people have on their or their children’s treatments, and the role they have in making treatment decisions.

EURORDIS is conducting an internet-based survey in an effort to better understand how well people are engaged in medical care, including the relationship with health care providers, the understanding of the therapy (its efficacy, possible difficulties, benefits as they see them), reasons why they agreed to take this therapy, as well as if they are satisfied with the information they were given.

The survey is for people age 15 years or older and will take approximately 30 minutes.
Take the Survey