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Letter to NHS England Requesting Review of EAP Type 1 Interim Policy Criteria

24 August 2017

Sent yesterday from clinicians and advocacy groups, this asks for the age limit and SMN2 copy number restrictions on potential access to be removed.

These issues will also be discussed at the Services Development Committee which is organised by Muscular Dystrophy UK and Chaired by Baroness Celia Thomas at the upcoming meeting of the 7th of September at the House of Commons, attended also by Professor Adrian Williams (Chair of the Clinical Reference Group for Neurosciences), and Penny Gray (accountable commissioner for the Clinical Reference Group for Paediatric Neurosciences).

Read the letter here