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Revisiting the Consensus Statement for Standards of Care in SMA - Full Report

30 August 2017

You can now read the full workshop report written by the clinical researchers and patient representatives from Europe and the US who met last year to start work on the major review of the International Standards of Care for SMA.

Dr. Alex Murphy, our Clinical Care Research Correspondent, attended. SMA Support UK will be part of the group that will write the family friendly version of the new standards once they have been agreed.

Here is the full report of what happened at the workshop