Survey and Submission to NICE about Access to Nusinersen
19 March 2018
Thank you to all of you who responded to our survey about the impact of SMA and views about access to nusinersen - you can read the results here. We shared them with Muscular Dystrophy UK, TreatSMA and the SMA Trust.
What you said informed our submission to NICE which you can read here. NICE advise they will report on their findings in November 2018.