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Clinical Care Research

Clinicians worldwide are constantly working on how to manage the symptoms and provide the highest standards of care so that people with SMA can have the best possible quality of life. 

 

Scoliosis in Spinal Muscular Atrophy

This article looks at recent research into different aspects of spinal surgery, in the treatment of scoliosis in Spinal Muscular Atrophy.

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ENMC Workshop - 'Airway clearance techniques in Neuromuscular Disorders'

On 3rd March 2017, 21 participants from 12 countries across the world met in Naarden, Netherlands, to attend and contribute to this 228th ENMC International Workshop. You can read a report of this                            workshop here.

What Happens After a Successful Clinical Trial

In this article, Dr. Alex Murphy - our Clinical Care Research Correspondent - describes the organisations involved and outlines the processes that have to be gone through before a drug can be                                      prescribed for an individual in the UK. 

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Complementary and Alternative Therapies in SMA

In Dr. Alex Murphy's latest article, he summaries some of the more common CATs (Complementary                                and Alternative Therapies) and looks into evidence for                          their use in SMA or similar conditions.

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End Of Life Care

In this article, Dr. Alex Murphy describes the sensitivity of discussions around 'end of life care'. He also introduces some of the studies that have been carried out to examine the effectiveness of palliative care.

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Medications Research Review         

Dr. Alex Murphy, looks at medications that target other conditions that have been investigated as a treatment for SMA. He gives some background on each medicine, how they are supposed to work and how the medicine was investigated in clinical trials.

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How Do Doctors Select Treatments?

In this article, Dr Alex Murphy will try to answer this question and outline one way that decision makers within the NHS compare the different types of study and decide on how strong the evidence is, for or against a treatment. 

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Diet and Spinal Muscular Atrophy

In this review article, Dr Alex Murphy, our Clinical Care Research Correspondent, highlights and explains what research has looked into nutrition and SMA over the past three years.

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Exercise and Spinal Muscular Atrophy

Dr Alex Murphy, our Clinical Care Research Correspondent, looks at studies from the past three years which investigated the effects of exercise on individuals with SMA and also refers to two less recent studies.

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SMA REACH UK

SMA Research And Clinical Hub UK launched in October 2013 with the support of a number of charities. It is seeking to establish the first national clinical and research network and aims to promote a national agreement on clinical and physiotherapy                              assessment and standards of care. 

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