Tel: 01789 267520

how your Money helps

Our Outreach Service

Our Outreach Service

We are grateful to Lotteries who fund 70% of the cost of this service. In 2016, with this and your donations, we supported more than 260 individuals and families affected by SMA.

Our Information Service

Our Information Service

In 2016, more than 6,700 people visited our information and support website landing page. Our information sheets and Route Maps give accurate, evidence-based, reliable and up-to-date information.

Our Multisensory Toy Packs

Our Multisensory Toy Packs

In 2016, we sent out 30 multisensory toy packs for babies with SMA Type 1 or SMARD.

Our Information, Support and Social Events

Our Information, Support and Social Events

In 2016, our April Information Day was attended by over 170 people and the Sunday Fun Day by over 180. Nearly 300 people met up at our four Winter Events, held across the UK.

Our Research Updates and Information

Our Research Updates and Information

More than 3,000 people who visited our website in 2016 visited the Research landing page.

The UK SMA Patient Registry

The UK SMA Patient Registry

Promising treatments for SMA are being developed which need to be tested in clinical trials. It can sometimes take years to find enough people. We help fund the Patient Registry which can speed this up.