Tel: 01789 267520

Information and Support Services

When you contact SMA Support UK Information and Support Service, your contact information and brief details of your enquiry are stored carefully and held securely using a computerised database.

We use this information to assist you with your enquiry. In due course we will contact you with other information about what we do and how, if you wish, you can help us. You will be invited to continue to receive our communications. Please be assured, we will not share or distribute your personal information to third parties unless we have your permission or are required by law to do so. 

If you have a lot of contact with our service, we will need to gather and record relevant personal information so that we can provide you with the most effective support service. We may need information from other health and social care professionals supporting you. Your information may be shared within our Support Services Team.

Your personal information will never be disclosed to anyone else unless it is necessary as part of our support service. You will always be asked if you agree to this. The only exception to this is if we are ever concerned that someone is a danger to themselves or others or we believe a child or adult is at risk of harm. We also keep in touch with the UK SMA Patient Registry. We don’t share your personal contact information with the Registry Curator but we do let her know if you tell us of a significant change in your circumstances that will affect your participation in the Registry.

We produce statistical returns and reports about our services and the feedback we receive. Any information used in this way is always anonymous.

If you no longer wish to receive our services, we normally keep your records for 7 years in case you decide to come back to us.

You may at any time ask to see copies of any information we hold about you.


In this section