Tel: 01789 267520

How we can support you

You can call us Monday to Thursday (9:00am - 3:30pm) and Friday (9:00am - 1:00pm) on 01789 267 520 (except public holidays) and ask for Support Services or email us.

We regret we are unable to respond to individual requests for support from those living overseas.

The Outreach Service

The Outreach Service

Our Outreach Workers offer personalised support by phone and email or may be able to visit you at home.

Route Maps

Route Maps

These summarise support services and resources available in the UK for families and individuals affected by SMA Types 1, 2 or 3, Adult Onset SMA or SMARD.

Multisensory Toy Packs

Multisensory Toy Packs

Our Multisensory Toy Packs are available free of charge for babies in the UK diagnosed with SMA Type 1 or SMARD.

Ask A Question

Ask A Question

People often ask us "What do other people do?". We can email your question to the many people who are signed up to our Sharing Experiences Network.

Peer Support

Peer Support

If you're 18 or over, you may wish to have direct, confidential phone or email contact with one of our Peer Support Volunteers (PSVs).

Information, Support and Social Events

Information, Support and Social Events

SMA Support UK and many other organisations offer a range of information and social opportunities that you may enjoy and find helpful.

SMA Voices

SMA Voices

In these pages people describe their very personal stories.

Online SMA Communities

Online SMA Communities

Some people find it helpful to join online forums and social media support groups set up by people affected by SMA.

Information Publications

Information Publications

Find out more about the information publications we produce, the children's books we offer and our Inspirations newsletter.