International Standards of Care for SMA
The current International Standards of Care for SMA (SoC) were published in 2008 and established general guidelines for the management of SMA. You can read more about this here.
SMA Support UK was key in initiating and helping to fund the workshop held in February 2016 for clinical researchers and patient representatives from Europe and the US to start work on reviewing the SoC. Our Clinical Care Research Correspondent, Dr. Alex Murphy, was there. You can read the workshop report here.
And the full write-up of the workshop here.
The full report of the new SoC and the family-friendly version will hopefully be published in due course. SMA Support UK is signed up to be part of the group that will write the family-friendly version. We will update you as soon as we know more about when this will all happen.
Photo from February 2016 meeting