Tel: 01789 267520

If your child with SMA is receiving / has received the treatment nusinersen at any time

Survey 5. Parents / main carers (including any bereaved) of children who have previously received, or are currently receiving, nusinersen treatment.

(There are four other surveys seeking views from others in the Scottish SMA Community, which is why it is called 'Survey 5').

The survey does not seek to gather any clinical measures or evidence but asks you about the physical, practical and emotional impact of your child receiving nusinersen: