Tilly Griffiths, was born in January 2000, and has Type II SMA. Tilly and her family have produced a book about Tilly.
Even though Tilly cannot walk, roll or crawl, she rides ponies and in helicopters, she sails, loves the beach and goes to ballet classes every week in her own dancing frame.
This book is written to inspire all children and families affected by SMA. Tilly and her parents want to show what can be achieved after a Type II diagnosis.