Tel: 01789 267520

If the child, young person or adult with SMA has not received the treatment nusinersen

Survey 1. Parents / main carers of children and young people aged 0 – 18 years living with SMA.

Survey 2. Adults living with SMA and their partners / assistants.


Survey 3. Other relatives of children, young people and adults       living with SMA.


Survey 4. Families who have been bereaved by SMA.