Other SMA Related Research
SMA related research doesn’t only take place in the field of science and medicine. It is also of interest to social scientists and ethicists. Research into the social and institutional barriers faced by people with disabilities, including people affected by SMA, is also a big area for research.
SMA and Screening: The Views of Families - The Imagining Futures Research
Dr. Felicity Boardman’s Project Report
The next UK policy review for SMA screening is due this year (2017). In April, Felicity was appointed to the Foetal, Maternal and Child Health Reference group of the National Screening Committee and will be directly inputting on the literature review, which will include her research. You can read her report and what subsequent work is taking place.