You can call us Monday to Thursday (9:00am - 3:30pm) and Friday (9:00am - 1:00pm) on 01789 267 520 (except public holidays) and ask for Support Services or email us.
We regret we are unable to respond to individual requests for support from those living overseas.
Our Outreach Workers offer personalised support by phone and email or may be able to visit you at home.
Our Multisensory Toy Packs are available free of charge for babies in the UK diagnosed with early onset SMA Type 1 or rarer forms of SMA.
Should you find yourselves in medical distress in unfamiliar surroundings, you can be confident of bringing medical professionals up to speed accurately and quickly by using our EHP app.
We offer a range of ways to link up and share information, tips and experiences with other people affected by SMA.
We provide free information and support to health, education and social care professionals.
Find out more about the information publications we produce, the children's books we offer and our SMA Matters newsletter.