Tel: 01789 267520

Our Strategy

April 2016 – March 2018

We will:

  • listen to, support and empower families and individuals affected by SMA by providing personalised support, information and other services
  • support health, education and social care professionals providing front line services to the SMA Community
  • offer individuals and families affected by SMA opportunities to connect with others at information, support and social events
  • inform the SMA community of SMA and disability related consultations, surveys and campaigns
  • raise awareness of SMA and the need for better services, funding and further research
  • support initiatives that:
    • strengthen the connections between families, researchers and medical practitioners;
    • improve the management and treatment of the condition;
    • advance progress towards and access to major clinical drug trials
  • grow support for and action with the SMA community:
    • through partnerships and alliances with other national charities and international groups;
    • by working with the UK health, education, social care and research communities
  • offer individuals, families, trusts and businesses, opportunities and innovative ways to support and fund the charity’s work