Tel: 01789 267520

Our Strategy 

April 2017 – March 2018

We will:

  • listen to, support and empower families and individuals affected by SMA and provide personalised support, information and other services
  • support health, education and social care professionals providing services to the SMA community
  • offer individuals and families affected by SMA opportunities to meet with others at information, support and social events
  • inform the SMA community of latest SMA related research developments, support/disability service  updates, consultations and campaigns
  • fund and facilitate initiatives that:
    • strengthen the connections between families, researchers and medical practitioners;
    • improve the management and treatment of the condition;
    • advance progress towards and access to major clinical drug trials
    • Ensure the maximum impact for our work 
      • through partnerships and alliances with other national charities and international groups;
      • by working with the UK health, education, social care and research communities
  • offer individuals, families, trusts and businesses, opportunities and innovative ways to support and fund the charity’s work