Our Vision and mission
A world where Spinal Muscular Atrophy is treatable and where anyone affected by any form of SMA receives the support they need.
We are an established charity that supports and empowers anyone affected by Spinal Muscular Atrophy. We are advocates for better services, raise public awareness and fund research related initiatives.
Our Guiding Principles
Spinal Muscular Atrophy (SMA) is a complex and rare neuromuscular condition which affects each individual and family differently. Some face the distress of early bereavement; others face the challenge of disability and obtaining the right support, care and opportunities to enable them to live long and fulfilling lives.
At SMA Support UK we will ensure, both within and outside our SMA Community, that we are sensitive to these different experiences.