Tel: 01789 267520


Spinal Muscular Atrophy Support UK

We believe that respecting and protecting a person’s privacy is of the utmost importance and handle personal information obtained through our work in accordance with the principles of the Data Protection Act 1998. 

This privacy policy tells you how SMA Support UK uses and protects your information when you use this website and make contact with us.

Any changes to this policy will appear on this page.

Overarching Principles

Please be assured, we will not share or distribute your personal information to third parties unless we have your permission or are required to do so by law.

We are committed to ensuring that any information we hold about you is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect.

Cookies and Google Analytics

By using this website, you consent to the processing of data about you by Google in the manner and for the purposes described here.

Information and Support Services

Making a Donation

Setting up a Fundraising or Tribute Fund website page (micro-site)

Making a Shop Purchase 

Signing up for mailings

Links to other websites

How you can review and correct the Information we maintain about you 


Last reviewed and updated August 2016.

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