Resources for Professionals
We hope that some of the resources and services we can offer you will be useful. If you have any questions, please don't hesitate to pick up the phone (01789 267520) or email firstname.lastname@example.org If we can't answer directly we'll try to signpost you to someone who can.
These are about the types of SMA and related topics. They are particularly helpful if you are new to SMA.
These cover a wealth of information about resources and services available to help individuals or families affected by SMA Types 1, 2, 3, Adult Onset SMA or SMARD.
Our small team of experienced staff have been working with individuals and families with SMA for many years. We can provide emotional support, practical advice and guidance by phone and email, or a home visit.
We can share with you what has worked well for other individuals and families and tell you about possible sources of funding.
We can link people up with others also affected by SMA. There are various ways this can happen.
These are about the condition and are free to families. Professionals can also request a copy for their own reference.
These can be delivered free of charge to families with babies with SMA Type 1 or SMARD. Families may ask for a toypack directly or via any professional.
We don't provide this but suggest you contact our partner Muscular Dystrophy UK to see what they can offer via their health professionals network.
We can let you know about any changes to our services via our occasional Update for Professionals email. Or you can sign up for our monthly E-newsletter which covers what's happening in the SMA community.