Resources for Professionals
We hope that some of the resources and services we can offer you will be useful. If you have any questions, please don't hesitate to pick up the phone (01789 267520) or email firstname.lastname@example.org If we can't answer directly we'll try to signpost you to someone who can.
This information sheet is written for health, education and social care professionals who have no, or limited, knowledge of SMA.
These are particularly helpful if you are new to SMA, and cover a range of information starting from 'What Is SMA?'.
These cover a range of topics from equipment and health, to starting school, access to work, housing adaptations, financial support and more. They're currently organised by Type of SMA, but we are working to make them more accessible.
Our small team of experienced staff have been working with individuals and families with SMA for many years. We can provide emotional support, practical advice and guidance by phone and email, or a home visit.
We can share with you what has worked well for other individuals and families and tell you about possible sources of funding.
We can link people up with others also affected by SMA. There are various ways this can happen.
These are about the condition and are free to families. Professionals can also request a copy for their own reference.
Our Multisensory Toy Packs are available free of charge for babies in the UK diagnosed with early onset SMA Type 1 or rarer forms of SMA.
We don't provide this but suggest you contact our partner Muscular Dystrophy UK to see what they can offer via their health professionals network.
We can let you know about any changes to our services via our occasional Update for Professionals email. Or you can sign up for our monthly E-newsletter which covers what's happening in the SMA community.