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SMA Voices

Our thanks to the people who describe their very personal experiences in these pages.

If you would like to contribute to these pages, please click here.

Type 1

Type 1

Families talk about their experiences of diagnosis and caring for their babies.

Type 2 and Type 3

Type 2 and Type 3

Young people, families and adults talk about how they manage their condition, overcome social and institutional barriers and achieve their ambitions.

Type 4

Type 4

Adults and families talk about their experiences.

SMARD

SMARD

Families talk about their experiences of getting a diagnosis and caring for their child.

Bereavement and Memories

Bereavement and Memories

You can read families' experiences of grief and how they cope with bereavement, as well as people's personal tributes and memories of those they love.

SMA Voices Guidelines

SMA Voices Guidelines

We are keen to hear from anyone who would like to contribute their experiences to these pages.