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Spinal Muscular Atrophy with Respiratory Distress (SMARD)

Our SMARD information sheet provides a brief overview of the causes and effects of Spinal Muscular Atrophy with Respiratory Distress and includes sources of further information and support.

Our toys booklet explores toys, play and activities for babies who have SMA. There is also a leaflet for health, education and social care professionals: ‘Toys and Play for Babies and Children with Spinal Muscular Atrophy – A Guide for Professionals’.

Sources of information and support on the following topics can be found on our Route Mapdiagnosis; genetics; care planning; health; equipment; transport; housing; leisure activities and holidays; financial and legal; education; employment; emotional and social support.