Standards of Care for SMA
The Standards of Care for SMA, published in 2008, established general guidelines for the management of SMA. You can download them here.
How the standards were established
In May 2006 the International Conference on the Standard of Care for SMA was held which resulted in 'The Consensus Statement on SMA' published in the Journal of Child Neurology 2007; 22:1027-49.
Thomas Sejersen of the Swedish Karolinska Institute then worked with this group to create a more user friendly précis of the recommendations. This was published in 2008 by Treat NMD with sponsorship from The Jennifer Trust, as we then were, and the then Muscular Dystrophy Campaign as the “Standards of Care for SMA”. These two documents established general guidelines for the management of SMA and are widely disseminated to health professionals, individuals and families affected by SMA.