Spinal Muscular Atrophy Type 2
Our SMA Type 2 Information sheet provides a brief overview of the causes, effects and management of the condition.
Sources of information and support on the following topics can be found on our Route Map: diagnosis; genetics; care planning; health; equipment; transport; housing; leisure activities and holidays; financial and legal; education; employment; emotional and social support.
The Treat-NMD Standards of Care for SMA were drawn up by international experts and provide a summary of guidelines for health professionals which are also available for families.
Toys, Play and Activities for Children with Spinal Muscular Atrophy provides practical tips and ideas for toys, play and activities and Leisure Activities for Children and Young People with Spinal Muscular Atrophy lists some of the many organisations that enable people with disabilities to participate in leisure activities.
For health, education and social care professionals there is the following leaflet: ‘Toys and Play for Babies and Children with Spinal Muscular Atrophy – A Guide for Professionals’.
SMA Type 2 and Me is a book written for children who want to learn more about Spinal Muscular Atrophy (SMA). Each family affected by SMA Type 2 can request a free copy of the book by phoning 01789 267 520 or emailing firstname.lastname@example.org. Further copies of the book can be purchased from the shop.
Smasheroo is an uplifting story of how everyone is different. It was written for younger children by a parent. Tilly Smiles is another inspirational book where Tilly, who has SMA Type 2, shares her hobbies and interests. You can order these through our shop.
SMA Type 2 and 3 Voices are the personal experiences of children, young people and adults.