Tel: 01789 267520

Spinal Muscular Atrophy Type 2

Our SMA Type 2 Information sheet provides a brief overview of the causes, effects and management of the condition.

Sources of information and support on the following topics can be found on our Route Mapdiagnosis; genetics; care planning; health; equipment; transport; housing; leisure activities and holidays; financial and legal; education; employment; emotional and social support.  

The New International Standards of Care for SMA provide a summary of guidelines for health professionals. You can find these here. We are working with Treat-NMD and other international patient groups to produce a family-friendly version. You may also find it helpful to read the summaries from our April 2018 standards of care workshops led by expert health professionals. You can find these here.

Toys, Play and Activities for Children with Spinal Muscular Atrophy provides practical tips and ideas for toys, play and activities and Leisure Activities for Children and Young People with Spinal Muscular Atrophy lists some of the many organisations that enable people with disabilities to participate in leisure activities. We also have: ‘Toys and Play for Babies and Children with Spinal Muscular Atrophy – A Guide for Professionals’.

SMA Type 2 and Me is a book written for children who want to learn more about SMAEach family affected by SMA Type 2 can request a free copy of the book by phoning 01789 267 520 or emailing supportservices@smasupportuk.org.uk. Further copies of the book can be purchased from the shop

Smasheroo was written for younger children by a parent. It’s an uplifting story of how everyone is different. You can order this through our shop.

SMA Type 2 and 3 Voices are the personal experiences of children, young people and adults.