Tel: 01789 267520

What's On Offer?

Saturday Information Day - 'Progressing Our Futures' 10.00am - 4.30pm

The morning session offers parents, carers and adults, and young people aged 15 years and over, a chance to meet with leading health professionals to talk about the latest recommendations for standards of care for SMA. The afternoon gives an overview of the latest developments in trials and treatments and what the future holds.

More detail here

Also available:


Saturday Night Social 7.00pm - 11.00pm

Find out more

Sunday 'Keeping Active and Having Fun' 10.00am - 3.00pm with four 'have a go' sessions as well as information about ways to enjoy leisure time.

You can 'have a go' at:

(Please note: you can request to try out any of the above activities by ranking your requests in order of preference on your booking form. Sessions and numbers are limited so we will do our very best to fit you in).

You can also browse the information stalls throughout the day and, for the young and young at heart, there will be face painting, a magician, tombola and balloons to take home!

Further information about personal assistance and accessible facilities, hotel accommodation, grants for travel and accommodation, and costs and how to book, can be found here.